Meet our team that is working to build and deliver tools to make navigating an eosinophilic or rare disorder easier.

Carol Jones is a licensed registered nurse with 40+ years of experience in asthma education and clinical practice. She has been a physician service representative for Allergy Guardian, served as a consultant to the American Academy of Pediatrics on various asthma devices and guidelines and has been involved in asthma related research for more than 20 years. She has served on industry advisory boards and as medical editor for the Allergy and Asthma Network. In her retirement she is serving as a Faith Community Nurse in a large episcopal parish in Tucson, Arizona.

“I come alive when I have the opportunity to engage with people from different life experiences. We learn from each other. There is nothing better than the challenge of improving health in people dealing with limited resources and hope.”

Donna Behler McArthur Donna brings over 50 years’ experience in nursing, including 40 years as a Family Nurse Practitioner (FNP), NP educator, and administrator within ambulatory health care settings in the United States and Saudi Arabia. I began my career trajectory within the USAF to include being a flight nurse. She has a Masters of Science in Nursing (FNP) from Vanderbilt School of Nursing and a Ph.D. in Nursing from the University of Maryland School of Nursing. Currently “retired”, she holds adjunct clinical professor positions at Vanderbilt University School of Nursing, the University of Arizona College of Nursing and Department of Neurology. In recent years, her activities have focused on the healthcare of adults living with ALS and serving as a parish nurse.

“I have spent many years working with individuals experiencing chronic and acute illnesses, particularly ALS. There are numerous resources available to those living with ALS and their family members. Now knowing how to access the resources, esp. in emergency situations is another story. Our work has the potential to provide such an important resource.”

Pam Squires holds a Master’s Degree in Social Work, a BA in Education and also has been a Registered Radiation Therapist.  Her 25+ years Social Work experience spans a variety of settings including home-based, hospital and other facility-based services. With her personal and professional understanding of the challenges of navigating complex health issues, she is able to identify programs and resources that address underlying pain points and system breakdowns. She brings a passion for navigating care within an interdisciplinary team to ensure care plans and interventions are carried out with the whole patient and support system in mind.   

“Life is way too hard and way too short to travel these winding roads alone. Whether we like it or not – we need each other.”

Roni Byrne, JD Associate City Prosecutor in Tucson, AZ shares her understanding of the law and passion about protecting and serving others to the work of ERDC. Originally from Israel, receiving her legal degree in the UK and fluent in Hebrew – Roni brings a diverse perspective to her role. She is engaged with multiple underserved communities and blends her personal and professional experience to sharpen and strengthen ERDC’s strategic focus. Roni is the go-to for friends looking for someone to help make decisions and be present in a medical emergency. Her personal experience with a chronic disease enables just the right balance of grit, stamina, care and commitment.

“When someone tells you something about your disease or body that you know is not true – listen to that little voice inside you. Take care of yourself. Be selfish that way. If you don’t take care of yourself you are no good for anyone else.”

Sarah Jones has more than 25 years of experience leading non-profits and health care programs, Sarah has designed programs and led trainings for local, national and international audiences. Sarah is passionate about securing funding that meets the needs of all stakeholders. She holds two Masters degrees: Masters of Science in Strategic Design Management from Parsons the New School and a Masters in Public Administration (healthcare).  Her life has irrevocably changed since being diagnosed with the rare disease, EGPA, Eosinophilic Granulomatosis with Polyangitiis. She brings her passion for change to this world of rare diseases.

“Chronic disease is rough. We need a world we are excited to live in and be a part of, and to build relationships that matter.”