Values & Guiding Principles

We take our values and guiding principles seriously. Every action we take, every tool we create is checked against our values and guiding principles to ensure we are staying true to our purpose – making life easier for people with rare diseases.

• We tell the truth about what it is like to live with a complex chronic disease.
• We tell the truth about what it is like to love someone with a complex chronic disease.
• We listen. Deeply.
• We freely share what we have with other organizations.
• We keep things practical and simple.

We strongly believe in partnering. We do not duplicate what already exists. We partner with organizations to make the HEAT Kit™ available to their community free of charge. We also direct people who receive HEAT Kits to organizations providing support & education. In effort to keep costs down we utilize a scalable, replicable process in developing kits to ensure we can provide the maximum number of free HEAT Kits.