Eosinophilic & Rare Disease Cooperative
You don't have
to navigate
this alone.
Every resource we build, from HEAT Kits to the Decision Tree to policy advocacy, exists for one reason: to make quality care and treatments accessible to every rare disease patient. No fluff, no detours. Just tools that work.
Listen to the Rare Candor Podcast
Real talk about rare disease — treatments, advocacy, and life in between.
Free Tool
Not sure what
care you need?
Start here.
The Rare Disease Decision Tree is a free, easy-to-use roadmap built by rheumatologists, patients, pharmacists, and care partners. It walks you through key decisions about specialists, treatments, and emergency care — so you spend less time guessing and more time getting better.
DECISION TREE
Vasculitis
Best Practice Suggestions
OUR SERVICES
We’re Here to Fill the Gaps
At ERDC, we pride ourselves in not duplicating what other organizations are already doing. Because we’re patients and care partners, we know energy is limited — so every tool we create is practical, tested, and built from real experience.
Upcoming Events
Join the Rare Disease Community
From educational sessions to advocacy events, ERDC connects patients and care partners with the people and information that matter most.
20
August – 2026
Biologics: What are they?
IN
2026
Stay Tuned On Luma!
Available HEAT Kits™
Take Control of Your Disease
Our free HEAT Kits™ give you the tools to prepare for medical visits, communicate with providers, and advocate for yourself, especially in emergencies.
EGPA Vasculitis
A rare autoimmune disease causing inflammation of small and medium blood vessels. This kit helps you explain EGPA to any provider, anywhere.
Myasthenia Gravis
MG can mimic other conditions and is frequently misunderstood in emergency settings. This kit includes emergency pages to help keep you safe during a crisis.
Our Values
What We Believe
Three beliefs guide everything we build, share, and advocate for.
Education Empowers
When patients understand their disease, they become better advocates for themselves. We make information accessible.
Access Is a Right
No patient should be left behind because of cost, geography, or a lack of information. Our tools are free always. Check out our tool below!
Community Heals
Rare disease is isolating. We connect patients, caregivers, and partners because none of us should navigate this alone.
Rare disease news,
straight to your inbox.
Resources, HEAT Kit updates, events, and advocacy news — no fluff, just what matters to the rare disease community.
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We couldn't do this without them.
Our corporate and advocacy partners share our belief that we are stronger together and that supporting the rare disease community is worth it.
Corporate Partners
Advocacy Partners
Interested in supporting the rare disease community?
Partner With Us